Life in Grey Dementia

Vantage Point: A Glimpse into Dementia

“It only takes 20 minutes,” Melissa Knott, community relations coordinator for Highgate Senior Living in Wenatchee, told us as she invited Erin Cass, Mary Brandt, and me to participate in a sensory experience called the Virtual Dementia Tour.

Little did we know that the simulation, which helps family members and caregivers understand the overwhelming effects of Alzheimer’s disease and dementia, would be an unforgettable and personally revealing experience.

Since I’d learned about the tour beforehand, I thought I knew what to expect as I was outfitted and given instructions, but I was not prepared for my brain to go into survival mode as I entered the room. I hunched as I felt my world shrink, and I tried to look purposeful, even though I’d instantly forgotten some of the simple tasks assigned to me. I felt no impulse to smile, interact with Mary or Erin, or feel anything but a narrow, tunnel-like focus.

It was hard to imagine that just the night before, I was riding a rocket of a horse in a community parade, outwardly waving and laughing. That extroverted person was gone, and in her place was someone who shuffled instead of walked, set the table with a towel instead of a tablecloth, and asked for help but ignored the answer.

Afterward, the facilitator went over how the simulation enhanced each of our unique character traits to give us an intimate, introspective glimpse into what our own life might look like if we were diagnosed. I realized the effects of the disease could make a once big world feel very small, and for someone who’s normally independent and active, how depressing that could become.

Thanking Melissa, the 3 of us started to leave, but Erin turned back. “I need to go see my grandma,” she said, and I wished I could hug mine, who passed long ago from the disease.

As a community liaison for Health Alliance, I have participated in both the Wenatchee and Moses Lake Walks to End Alzheimer’s that advocate a cure and honor loved ones. Much like my virtual experience, these events generate empathy, inspire, and give us the energy to make a difference.

It’s not too early to form a team for a walk in September. Visit alz.org/walk to find a walk near you. And for more information on the Virtual Dementia Tour in North Central Washington, please contact Melissa at Highgate Wenatchee at 509-665-6695 or Laurie at Summerwood Alzheimer’s Special Care Center in Moses Lake at 509-764-1900.

Shannon Sims is a Medicare community liaison for Health Alliance, serving Chelan, Douglas, Grant, and Okanogan counties in Washington. She has four sons and two grandsons. During her time off, she performs as part of a rodeo drill team on her horse, Skeeter.

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