Tag Archives: Walk to End Alzheimer’s

Join the Fight

Vantage Point: Join the Fight

As days go by, we never really notice change until we sit down to reminisce and look back at our past. Every couple of years, I look back at old family pictures and home videos and realize how much has changed. This triggers memories and further discussion on that particular time in my life.

As we go through our lives, we meet so many people. It can be hard to remember all their names, well at least for me, but I always remember faces for some reason. I love to see people I remember, even if I don’t quite remember their names.

In this line of work, I get to see so many people with different backgrounds, and unfortunately, with different illnesses. When I first encountered Alzheimer’s disease, I wasn’t sure how to approach it or even how to act. It was not an obvious sign. Instead, it was very subtle. I really had to pay attention and see the different demeanor this person had.

After that encounter, I started to do my research on what happens when a person gets diagnosed with Alzheimer’s. I came across the Alzheimer’s Association. I learned so much on its website and realized how Alzheimer’s is so common. Did you know that Alzheimer’s is the sixth leading cause of death in the United States? The disease also accounts for 60–80% of all dementia cases.

This illness takes away so many of our loved ones, neighbors, and friends. So what is being done? How can we stop this terrible disease from taking so many memories away? One thing to keep in mind if you are going through this, you are not alone. The Alzheimer’s Association has walks all over the county each year to raise awareness and funds for the research of an Alzheimer’s cure. The main reason for the walk is Alzheimer’s care, support, and research.

Here in the Wenatchee Valley, the walk will take place on September 8, from 8:30 to 10 a.m. at Pybus Public Market. In Grant County, the walk will be September 15, from 8:30 to 10 a.m. at Moses Lake High School. The Yakima walk will also take place September 15, from 8:30 to 10 a.m. at Sarg Hubbard Park.

To join the fight, join the Alzheimer’s Association at one of these walks. It’s an opportunity to be the change and the voice for those who are no longer with us.

 Jessica Arroyo, born and raised in the Wenatchee Valley, is a Medicare community liaison for Health Alliance, serving Chelan, Douglas, Grant, and Okanogan counties in Washington. During her time off, she enjoys spending time with her husband and infant son.

Remember September

Long View: Remember September

Try to remember the kind of September when life was slow and oh-so-mellow.

Many of you may remember this Andy Williams song from years ago. For me, it rekindled some fond memories of a younger time. Did you read the lyrics, or sing them (as I did)?

September is a time when we welcome autumn and say so long to summer. Living in the Midwest for most of my life, I love the change of seasons, especially this one! The shades of nature are a mixture of both summer and fall.

It’s a fun time in fashion when colors start to pop as wardrobes transition. It’s perfectly acceptable to wear plum opaque tights with a pastel-colored summer frock, a cozy navy sweatshirt with those favorite khaki shorts, or even a pair of gray light wool pants with some snazzy, strappy sandals! (Is white OK after Labor Day these days?)

One of the most prominent colors of the season that you will see displayed this month is purple. Did you know that purple is the official color of the Alzheimer’s movement?

September is Alzheimer’s Awareness Month, and here at Health Alliance, we participate in the Walk to End Alzheimer’s in many of our communities throughout Illinois. These wonderful walks are intended to raise awareness of the disease and to raise funds for care, support, and research. Alzheimer’s is an irreversible disease that progressively and slowly destroys a person’s memory and mental skills to the point of not being able to carry out the simplest task.

Finding a cure for this disease is the focus of Walk to End Alzheimer’s, and developing prevention along with treatment is part of the process. Check out the dates and towns for the 2018 walks near you. It’s a nationwide annual event, with more than 600 communities across the United States participating.

There are many way to help, even if you don’t want to walk. Take your first step and go the official website at Act.ALZ.org/Walk.

Here are some of the 2018 local walks where you may spot Health Alliance:

  • Champaign – September 22
  • Decatur – October 6
  • Mattoon – September 29
  • Bloomington/Normal – September 15
  • Peoria – October 13
  • Rockford – September 15
  • Springfield – September 22

Come up with your own transitional outfit to wear (maybe add a splash of purple,) and hope to see you at a walk!

Mervet Adams is a community liaison with Health Alliance. She loves her grandson, family, nature, and fashion.

Life in Grey Dementia

Vantage Point: A Glimpse into Dementia

“It only takes 20 minutes,” Melissa Knott, community relations coordinator for Highgate Senior Living in Wenatchee, told us as she invited Erin Cass, Mary Brandt, and me to participate in a sensory experience called the Virtual Dementia Tour.

Little did we know that the simulation, which helps family members and caregivers understand the overwhelming effects of Alzheimer’s disease and dementia, would be an unforgettable and personally revealing experience.

Since I’d learned about the tour beforehand, I thought I knew what to expect as I was outfitted and given instructions, but I was not prepared for my brain to go into survival mode as I entered the room. I hunched as I felt my world shrink, and I tried to look purposeful, even though I’d instantly forgotten some of the simple tasks assigned to me. I felt no impulse to smile, interact with Mary or Erin, or feel anything but a narrow, tunnel-like focus.

It was hard to imagine that just the night before, I was riding a rocket of a horse in a community parade, outwardly waving and laughing. That extroverted person was gone, and in her place was someone who shuffled instead of walked, set the table with a towel instead of a tablecloth, and asked for help but ignored the answer.

Afterward, the facilitator went over how the simulation enhanced each of our unique character traits to give us an intimate, introspective glimpse into what our own life might look like if we were diagnosed. I realized the effects of the disease could make a once big world feel very small, and for someone who’s normally independent and active, how depressing that could become.

Thanking Melissa, the 3 of us started to leave, but Erin turned back. “I need to go see my grandma,” she said, and I wished I could hug mine, who passed long ago from the disease.

As a community liaison for Health Alliance, I have participated in both the Wenatchee and Moses Lake Walks to End Alzheimer’s that advocate a cure and honor loved ones. Much like my virtual experience, these events generate empathy, inspire, and give us the energy to make a difference.

It’s not too early to form a team for a walk in September. Visit alz.org/walk to find a walk near you. And for more information on the Virtual Dementia Tour in North Central Washington, please contact Melissa at Highgate Wenatchee at 509-665-6695 or Laurie at Summerwood Alzheimer’s Special Care Center in Moses Lake at 509-764-1900.

Shannon Sims is a Medicare community liaison for Health Alliance, serving Chelan, Douglas, Grant, and Okanogan counties in Washington. She has four sons and two grandsons. During her time off, she performs as part of a rodeo drill team on her horse, Skeeter.

Love Story through Alzheimer's

Chasing Health: Member’s Love Story of Caring for Wife with Alzheimer’s

As a writer, I get to interview all kinds of people about all kinds of topics, and sometimes I come across a story that gives me goosebumps.

Earlier this year, I interviewed Cary Ulrich, a member who lives in Washington, for the spring issue of House Calls, one of our Medicare newsletters. This former drafter and current fire photographer was kind enough to share his heartfelt story with me.

Cary’s wife was diagnosed with Alzheimer’s a few years ago and passed away after we published this article. But for nearly three years, Cary was her primary caregiver, a tough task for a person watching someone he loves suffer from a disease that does not yet have a cure.

I don’t know if I could handle it, but Cary did. And he even found a way to make something positive out of it. Today, Cary leads caregiver support groups and is writing a book to capture how grateful he is for the time he spent with the love of his life.

November is National Alzheimer’s Disease Awareness Month, and with Thanksgiving coming up, I think it’s the perfect time to share Cary’s story of being grateful while making sacrifices. Maybe it’ll inspire you to join the cause to end Alzheimer’s or thank a caregiver.

Take a Minute to Care about Caregivers

Cary Ulrich, a second-year Health Alliance Medicare member, likes a challenge. The one-time drafter and surveyor at an engineering firm went from designing layouts for Wenatchee Valley’s buildings and subdivisions to taking photos on the frontlines of wildfires.

The toughest challenge he faced wasn’t learning the art of drafting by hand before the drafting world went digital, and it wasn’t going out on his first fire call to take pictures of people putting their lives on the line to save others. It wasn’t even a challenge he enjoyed, but it was his most important, being a caregiver for one of the people he loves most, his wife.

Sharon Ulrich was diagnosed with Alzheimer’s (a type of dementia) after showing some confusing symptoms, like having visions of everything from Old English-style visitors to spies and people trying to break into her home.

At first, doctors couldn’t figure out what was wrong. Was it depression? Dementia? And if she had dementia, what kind was it? At 63 years old, she seemed too young for that.

While doctors looked for answers, Cary stayed by his wife’s side. From her earliest symptoms and first diagnosis in March 2010 to moving her to an adult home in February 2013, Cary was a caregiver. And he quickly learned that being a caregiver can take its own toll.

“I was on the outside going through everything,” he says. “I was very frustrated and angry at the situation, not at her. I had all those feelings, and no one seemed to care about me.”

He watched his wife’s health get worse while knowing he couldn’t help her get better. The woman who’d walked past his back-row church pew almost two decades ago, the one he thought was way too classy to ever even talk to him, now needed him to be her caregiver.

Cary and Sharon

“It’s a hard process,” he says. “I don’t exactly know how I did it, but I’ve gotten to the point where I’ve had to let go of what was and just totally accept her for the person she is now.”

Cary never backed down. Instead, he used his experience of caring for a loved one with dementia to help others do the same, turning his negative situation into something positive.

Today, Cary helps run two caregiver support groups, one specific to dementia at the Grief Place of North Central Washington and a more general one at Aging and Adult Care of Central Washington in East Wenatchee. In both groups, Cary gives support and tips to other caregivers because he believes it will help them feel better and make smarter choices about their own loved ones.

“The more you know when these things happen, the more you can kind of accept them,” he says. “You know you’re going to have to change because your loved one has changed and can’t go back the other way.”

He also talks to nursing classes at Wenatchee Valley College and to first responders in different fire districts to help them know how to work with people with dementia and the family and friends who care for them.

Cary takes on other challenges, too, like helping put on the annual Walk to End Alzheimer’s in Wenatchee. Last year, he lined up sponsors, set up, and took photos for the 2-mile event that raised money and awareness.

Wenatchee's Walk to End Alzheimer's

Cary’s selflessness shines through in everything he does, and the man who likes to take on challenges and still goes out on fire calls hopes to make caregivers’ lives less challenging in the future.

“As a caregiver, you have the memories of what was, but all you have is what is. It’s a very difficult place to be. I know what these caregivers are going through, though. And I want them to know they are valued and can still enjoy life.”

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Discovering Effective Alzheimer's Disease Treatments

National Alzheimer’s Disease Awareness Month

This month is National Alzheimer’s Disease Awareness Month. Take the Purple Pledge to support people facing it today.

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The first trial that’s trying to prevent Alzheimer’s before symptoms start is happening now from BBC News.

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It’s important to know the signs of Alzheimer’s to protect yourself and your loved ones.

Intelligence Therapy

 

This touching story from the New York Times Magazine will remind you why we must end Alzheimer’s.

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Find facts and figures and resources, or find a walk to support a cure.

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Studies like this one are working hard to figure what exactly causes Alzheimer’s, from The Economist.

MRI Image Brain On Black Background

Doctors and scientists are getting close to effective treatments in the journey to end Alzheimer’s, from Forbes.

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Remembering with Alzheimer’s

Vantage Point: Sometimes Behavior is not a Problem, it is a Message

My grandmother died of Alzheimer’s over 15 years ago. I still remember my family’s denial. We couldn’t agree on her course of care, and it cut like a knife when she no longer recognized us.

Alzheimer’s is the third-leading cause of death in Washington. Yet current resources are treating less than five percent of those suffering. Recently, I attended an excellent presentation by Bob LeRoy of the Inland Northwest Chapter of the Alzheimer’s Association. Bob provided some staggering data which showed in comparison to diseases like diabetes, cancer, and HIV, Alzheimer’s receives the least funding for research. Yet it has grown the most drastically.

Nationally, more than five million people live with Alzheimer’s. With 10,000 people turning 65 every day, that number will grow quickly. Alzheimer’s has become the most expensive disease to treat in America and yet still lacks resources for support. Most caregivers of those diagnosed are unpaid family members.

Sadly, since my grandma’s time there have not been major strides in awareness, education or advocacy. But there are those trailblazing a path of hope. The Inland Northwest Alzheimer’s Association has a vision of a world without Alzheimer’s, where through research they can provide and enhance care to support all affected and reduce the risk of dementia through promoting brain health. Current resources include:

• Online workshops – Know the Ten Warning Signs
• Alzheimer’s Navigator – Help creating custom plans
• Community Resource Finder
• ALZ Connect – Networking with others who care for people with dementia
• Care Team Calendar – For coordination of responsibilities among family and friends
• Safety Center – Information and resources for safety in and out of the home

Find these resources at ALZ.org, or you may call 800-272-3900 for a 24/7 helpline.

Want to get involved? ALZ.org can help you find information on a 2014 Walk to End Alzheimer’s event in your area. In Douglas County, it’s a good idea to register your loved one on the Vulnerable Persons Register to help emergency responders assist and better meet their special needs. Find more.

Health Alliance Medicare encourages its members to take advantage of their comprehensive wellness benefits and in doing so hopes any signs of dementia can be identified early.  Until there is a cure taking action can help ease the pain of Alzheimer’s, both those for those who cope with the disease and those who care for them.